2. When you create an account in the Registry, you will be assigned a unique numeric identifier that will be used in place of your personal, identifying information. This code allows researchers to access information you have entered into the Registry without knowing who you are.
I give permission for the information I share in the Registry to be provided to other registries or databases using my unique numeric identifier. This includes sharing information for the purposes of participating in the Phelan-McDermid Syndrome Data Network (PMS_DN) with Harvard Medical School.