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 Welcome to the Phelan-McDermid Syndrome International Registry. The purpose of this registry is to consolidate information from individuals with Phelan-McDermid Syndrome into a single database, which will be utilized by researchers to understand Phelan-McDermid Syndrome better.


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Newsflash

Sign in to Reconsent Welcome to the Phelan-McDermid Syndrome International Registry. Please sign in to review and complete the new Informed Consent. There are new data sharing options, including the option to participate in the Phelan-McDermid Syndrome Data Network (PMS_DN). Once you have answered the 8 questions in the informed consent, check “Yes, I agree to participate in the Registry.” If you have any questions, please contact the Registry Coordinator at PMSIR@PMSF.org