Sign in to Reconsent

Welcome to the Phelan-McDermid Syndrome International Registry. Please sign in to review and complete the new Informed Consent. There are new data sharing options, including the option to participate in the Phelan-McDermid Syndrome Data Network (PMS_DN). Once you have answered the 8 questions in the informed consent, check “Yes, I agree to participate in the Registry.” If you have any questions, please contact the Registry Coordinator at This email address is being protected from spambots. You need JavaScript enabled to view it.